General health matters.

[andrew Ivimey]

30mg it is. My sister bunged me a 7 pack of 15mg when I went to stay upnorff and Id forgotten to pack anythingvstronger than Gaviscon. Within four days I was getting heart burn feelings again. Happy I was to revert to 30mg when I got back to the Shire. No side affects/effects! at all.

[Ray P]

Dealing with the side effects of the chemotherapy has been difficult for the last couple of days, a thick head, very low energy levels and I'm generally aching all over, oh, and the steroids are upsetting my guts. I'm off work and tried a bit of model making this morning but my concentration is a bit shot. I'm hoping the reaction will moderate in the coming days.

[andrew Ivimey]

That's how I feel normally Ray anything else is a bonus! Actually my friend next door is just a few weeks ahead if you. She's all serious and a suffering but still magnificent. I'd like to have her sense of humour! All power to you Ray.

[jack]

What he said ^

[Dave the bass]

Thirded!

[Paul Barker]

Chemo isnt easy. Nobody said it would be easy. Children have a very hard time with chemo and even worse things like graft verses host which the only can hope while they suffer it and you cant honestly give them hope because they must know you wont lie to them. But you are there with them in their suffering. You hope with every fibre of youre being it will go well for them.

Those children are heros. You are in a tough battle Ray, I honour you and hope you survive. Keep going. Churchill said “when you are going through Hell, keep going!”

When I was 8 my father the local Dr, said to me “people ask me Paul, “Why me Dr”? He said “All that I can say to them is ‘why not you’”.

Better a Dr that doesnt lie to you and keeps you in the dark. Honesty is best. Some questions dont have an answer you want to hear, but better to be told straight away, and you can get yourself ready for the whatever opens up tomyou as you go through this procedure which may keep you alive.

I have had many battles hard fought for on behalf od children who might have a right to say “why me?”. But something about children, they dont say why me? They get on with it and wait inhope it will end. You go to them to show your person is there for them whether you are helpless or not its helps them to know you are with them. It costs you, but thats what you signed up for.

[Greg]

Dealing with the side effects of the chemotherapy has been difficult for the last couple of days, a thick head, very low energy levels and I'm generally aching all over, oh, and the steroids are upsetting my guts. I'm off work and tried a bit of model making this morning but my concentration is a bit shot. I'm hoping the reaction will moderate in the coming days.

I’m rooting for you too. Stay positive.

My outwardly fit and vigorous brother in law (66) was diagnosed with oesophageal cancer last July with an initial 1 year life expectancy prognosis. His treatment was to be palliative. However, he has responded better than expected to chemo and the tumour has not grown further. He remains in general good health just as before his diagnosis, walking good distances every day with a healthy appetite, although he eats less than he did. He maintains a healthy weight and has no discomfort. He has just completed his 7th of an 8 cycle chemo plan. His chemo does physically impact particularly in terms of fatigue and paresthesia in fingers and toes. Both are well documented effects of chemo and feeling in extremities will return. He manages the fatigue by going to bed for a couple of hours every afternoon, but otherwise he carries on with his life by being positively spirited, hungry as ever for life’s experiences and anticipating a future exceeding his prognosis, and oh, he’s just bought a brand new Porsche 911 to have fun in! His cancer management plan has now changed from palliative to ‘living with cancer’. The hopeful expectation is he will outlive his initial prognosis considerably.

Just someone else’s experience and I understand not you, but staying positive, learning to manage the impact of the treatment and living as normal a life as possible has to be the way to go. Knowing you and the drive you have, I have no doubt you will achieve this.

[pre65]

Hi Ray, Greg's post above is an excellent example of how things can go well, despite a pessimistic prediction.

I hope and pray that your treatment has the outcome you desire and deserve.

[Greg]

Indeed, but Ray’s prognosis is very very good. I was trying to encourage positivity during the debilitating treatment process as it’s easy to become demoralised when you feel like shit.

[Ray P]

Thanks guys. I know I'm taking a big hit at the moment because of the newly started chemo regime, but it will improve and I will continue to be positive and active; I'm not feeling pessimistic, just realistic about what my body can deal with at the moment, and I will not succumb. I'm currently walking a few miles in the mornings and then taking it easy with rest and low-energy activities in the afternoon. The walking is good physically but also positive mental therapy. I plan to start returning to work soon, even if it's not full days, to maintain some routine and normality, and I want to get back on my bike for some short rides before too many more days pass.

[simon]

Good for you Ray

[steve s]

All the best ray..
Its all part of life's roller coaster ride.

[jiril388]

Due to excessive work and my desire to make more and more money, I ended up developing multiple sclerosis. Constant stress and ignoring my health led to a point where I realized that if I didn’t do something, it would only get worse, but I kept thinking, as many people do, that it would just pass and everything would be fine.

Now, I’m using a medical cannabis treatment from Releaf, specifically for multiple sclerosis. It’s been almost two weeks, and honestly, it’s already showing effects. It has slightly reduced my discomfort, and I’ve started to regain some of my quality of life. Of course, it hasn’t made everything disappear, but it’s more manageable now, and I hope that by the end of the treatment, it will be even better.

[andrew Ivimey]

I've never heard of the vile lust for wealth causing MS. Still, if you say so.
It seems that medical cannabis is very difficult to get in UK, whereas nasty home grown skank is ubiquitous.
Me, I read a book once where the main character liked the odd spliff and so much appeared to improve - marvelous!

[jack]

I've never heard of the vile lust for wealth causing MS. Still, if you say so.
It seems that medical cannabis is very difficult to get in UK, whereas nasty home grown skank is ubiquitous.
Me, I read a book once where the main character liked the odd spliff and so much appeared to improve - marvelous!

I tried CBD for several months for my arthritis. In the grand scheme of things it made no difference except to the weight of my wallet…